What a week...

Well the last week has been hell to say the least! Kaitlyn developed a rash on her cheeks, started puking a lot and her reflux was at an all time high. She has been miserable and screaming for about 85% of her waking hours and screaming while eating and like I said miserable.

At first I thought Kaitlyn was allergic to the peaches we gave her last week because thats when the rash and reflux upset started. We went to the Dr on Thursday and she upped her Zantac dose and gave me some Cetophil lotion to put on her cheeks. When I put the lotion on Friday Kaitlyn screamed because it hurt... I looked at the bottle and it has alcohol in it!! I can only imagine that was like lemon juice on a paper cut!! Anyway, since we gave her the higher dose of Zantac her rash got worse and ugly (*see pic - both cheeks look like that) and she was throwing up even more! Jon and I decided it might be better to NOT give her the Zantac and go see the Dr. So yesterday she got NO Zantac and has yet to have any today either and so far this morning she has spit up a few times (it was clear gooey liquid with curdled formula in it) and so far she hasnt this afternoon. Yesterday she had a few reflux episodes and screamed during them but she didnt spend the entire day screaming which was a relief for me! We just treated them with some Maalox and helped her get through them.

We went this morning to see the Dr again and she wants us to put her back on the 1mL of Zantac instead of the higher dose of 1.4mL to see if that works she also says the rash getting like that might just be coincidental and that if it was a reaction she would have a rash all over her face and body and not limited to the cheeks. I'm skeptical myself and I will talk to Jon later when he gets home to see what he thinks. If he wants to start her back on it then we will do it this evening. The Dr also wants us to go back to the Pediatric Gastroenterologist again because this is all still such a battle for Kaitlyn and she is still in pain after 4 months. She said the only thing more she can do is suggest Neocate (Prescription) Formula so she wants us to see the GI, which I'm happy about because I think I'd like to see about getting Kaitlyn on a different medicine. Maybe we could try Prevacid now that she is bigger and can eat off a spoon.

I'm waiting on the GI Dr to call me back now and to set up an appointment and I guess we'll see where things go from here.

Sometimes I wish we could just go back to the beginning and start all over again...