Here are the Dr's words "My diagnoses for Kaitlyn will be Asperger's Syndrome and Overanxious Disorder of Childhood (which is comparable to Generalized Anxiety Disorder in adults)."
Thats really all I have in me right now... I have a lot to think about. I just keep telling myself this is not because of anything I did or didn't do...
:*(
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An online diary of my journey through motherhood. It took us a long time to get here but finally our miracle has arrived. Please feel free to view The Child in Me, my pregnancy journal, to see how our little family finally came together!!
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3 comments:
Michele,
Sorry to hear about the diagnosis, I know first hand how extremely difficult it is to take in when you hear something like that.
I cried for a few days I think... BUT, (I know this is cliche) it could be soooooo much worse. There are many many children out there on the "spectrum" with full blown "autism" who are pretty severe and it is heartbreaking. Not to downplay K's issues as I'm sure (and I can tell) it can be pretty challenging at times!
At any rate I'm glad you got it looked into and got the diagnosis so now you can move on to get her squared away.
Although Zac's diagnosis is not the same as hers (he is "on the spectrum" just much less functioning)I am always here if you need to chat.
*Sara*
Michele,
You are going to be on an emotional rollercoaster as will your husband and other family members. You will not be on the same page, so-to-speak, all of the time, so keeping those lines of communication open will be important. It's OK to cry, to feel disappointed and angry. You eventually reach an acceptance although those other emotions may surprise you at times. Just understand that it's "real" now because your worries and concerns have been validated by a professional.
It's been almost a year since Aaron received his diagnosis by the school psychologist. I was expecting it, but it wasn't made any easier to hear it from her mouth or read it on paper. At least now we had PROOF that something had been going on and now we could pursue help for Aaron with documents in hand.
I have a 30-page report on Aaron's psychological findings plus recommendations for his classroom and home intervention. In order to receive services, the psychologist classified him as non-categorical early childhood in order to provide services to him through the school district. "Based on the data, Aaron does display characteristics of Autism, specifically Asperger's Disorder." There is no specific classroom setting that could address his behavior at his age, so I requested an inclusive PPCD unit where he would have experienced special ed teachers and could experience a "mixed" classroom setting of special needs kids plus "regular" ed kids. It was successful for him in that he could model behavior after "regular" kids and would be at such a high risk of picking up undesirable behaviors if placed in a PPCD classroom with all special needs kids. Makes sense?
I have some questions regarding Kaitlyn. Did the doctor share any helpful behavior modificaitons or suggestions? Any medication recommended? Any referrals to a Pediatric Neurologist?
((hugs)) Take each day at a time.
Actually I have nothing right now from the Dr... she was nice enough to email me the diagnosis before getting the report finished. She has manyto do right now and she said it should be done by mid Sept... so I will know more then and her reccomendations. She sent me info for a local support group but as far as meds and stuff go she wanted to wait on those I know since it was only the first intake visit. I will know more when I have the actual report to read... like I said... I was lucky she emailed me the diagnosis because School was going to start and she wanted me to be able to get K started with help before the report.
As for the behavior stuff... at home we handle her - it's not how WE need to do it, we do a fine job... it's the rest of the world lol. The one thing we know she definitely needs is social skills therapy and I have the number to a place for that too. I cant do anything with insurance until the report is done though... so I'm at a stand still there but at least the school stuff is going.
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